Hi everyone,

I decided that it was time to move our families story to a different outlet. Carepages has been a wonderful way to keep everyone in touch but it is very limiting in sharing photos, isn't always user friendly, and can not upload videos at all. This diagnosis of Charley's is lifelong and although I can't promise I won't change this again, I am hoping that this blog will be a home for us, and a way that you can watch her grow and continue to be part of our journey.

We reached a year out of the hospital on April 24th and for days prior and even now a few weeks after I just can't stop reflecting, I suppose everyday is like this for me now, but every milestone brings it ever more front and center. I just couldn't help but think how far we have come and although nothing has changed within her heart, everything has changed for our's. I hope that through our story, our challenges, or whatever we face with all of you behind us, that we will all learn a little bit about the things that are most important.

So welcome to our new home;) Thank you for supporting us, praying for us and feel free to pass this along to anyone you tell about our Charley.